More than 40 patients, families and friends, attended the first Myeloma health and wellbeing day to be held in Herefordshire last week to promote the information, advice and support available for people locally.
The event marks the start of Myeloma Awareness Week (June 21 to 28) and helps to connect with people to raise awareness of what Myeloma is, what it’s like to live with it, and the help that is available locally for people affected by Myeloma.
Health experts from Hereford County Hospital and St Michael’s Hospice were on hand at the event, held on Tuesday June 14 at the Three Counties Hotel, to provide information, signposting to community services and promote self-management to empower people living with Myeloma.
It was also an opportunity to bring people affected by Myeloma together to share experiences, learn more about managing fatigue, exercise advice, and holistic health and wellbeing, and to find out about and take part in free complementary therapies, such as Tai Chi, provided by local support services.
Dr Robinson, consultant haematologist at Wye Valley NHS Trust, said: “Around 25 people in Herefordshire are diagnosed with Myeloma each year. It is a rare cancer that many people do not know about it until they are diagnosed with it.
“While there is no cure for Myeloma, it can be managed successfully in many patients for years. Doctors help patients manage the symptoms with treatment so patients can lead an active life.
“Although conventional treatment for Myeloma is excellent and has improved hugely over the last decade, it is important that patients and carers have access to a wide range of services outside of this, to allow them to enjoy life to the full. We are fortunate in Herefordshire to have access to many of these services and it was a great opportunity to showcase this to people affected by Myeloma”.
Nurse specialist Philippa Hurlow, from Wye Valley NHS Trust, added: “We are delighted to host the first local Myeloma health and wellbeing day in the county, which builds on the local support group available for people affected by Myeloma and the many events we organise as a group each year.
“It brings people together who are affected by this rare type of cancer and provides easy access to local health experts and support services.
“We wish to thank everyone who attended and to say a special thanks to patient Sam Bryan who talked about living with Myeloma, and Jess East, whose mum has Myeloma, for raising money for our local Myeloma support group to fund this event”.
To find out more about the local support group call Philippa Hurlow on 07970 772351 or email firstname.lastname@example.org
For information about Myeloma UK visit www.myeloma.org.uk
Left to right: nurse specialist Philippa Hurlow, Myeloma patient Colin Bowcott and consultant haematologist Dr Lisa Robinson.
Notes to Editors WVT:
- Wye Valley NHS Trust is a provider of health services across Herefordshire and beyond. The Trust exists to improve the wellbeing, independence and health of the people we serve.
- By working closely with our partners, we can make good our promise to deliver a quality of care we would want for ourselves, our families and our friends.
- With an estimated annual turnover of around £180 million, we employ around 3,000 staff. We aim to build new relationships between our staff, patients, service users and their carers with the wider community.
For further information please contact:
John Burnett, Communication and Engagement Manager, Wye Valley NHS Trust: 01432 372928 or Fiona Gurney, Communications Officer 01432 355444 ext. 5105.